Another Sleep Study

So…the update I have is that they are stopping the caffeine a day early: she gets her last dose tomorrow, and doing the sleep study again on Sunday. The sleep study will determine if she still needs a monitor (fail) or not (pass), but we are taking her home Monday!

I really hope she passes, and we don't have to mess with or worry about taking her home on a monitor, but regardless, I see the light at the end of this nightmare tunnel! Won't have her home for my Birthday, but at least I got good news for it...

Small Happy Moments

Baby sleeping on my chest after a full tummy of Mommy's nummies...it is really getting harder and harder to leave her here...

Total Heart Break...

Kaylynn did not pass her sleep study, so she will not be coming home with us today. My heart is just broken in a million pieces, but she needs to stay there to make sure she keeps breathing. We are looking at this week on caffeine, stopping it on Friday, giving her 2 days free of it, then doing the study again on Monday...I was so hoping to have her home...

She stopped breathing once for about 10 seconds, and dropped her sat levels to mid-60's. She has some form of sleep apnea. They gave us the option to take her home, but it wouldn't be until Wednesday, they would give her major high doses of caffeine, and send her with a monitor to wear on her chest. Roger and I both decided that was not really what we wanted to do because if something were to happen to her, she'd be better taken care of if she's still in the hospital.

It was a really hard decision for me, because I want her home more than anything, but if we wouldn't get her until Wednesday, what is another few days and giving her the caffeine over a length of time instead of high doses all at once

Sleep Study

Got a tree, bought a new car seat, set-up the tree, and prepared to bring my sweet little girl home! We are crossing our fingers that she passed her sleep study and is coming home today. My insides feel like they're made of snakes.

Home Soon?

Kaylynn is now tube free! She nipples all of her feedings by bottle, and we're hoping the cogs are turning towards home soon.

"Thanks"giving?

Thanksgiving is going to be another bittersweet time for me...I am extremely thankful that she is doing so well, and so very proud of her. She took 21ml from breast, an entire bottle from me, and then 38ml from breast today. But I want her home with me so bad, and wish she could be a part of her first holiday with us...I want to stay here with her, but Roger put his foot down...

Healthy Eater

She is still off her Oxygen, and the feeding tube going in her nose now helps her to suck better from the nipple. She took 40ml out of her 60ml from breast at her 5pm feeding, and I was super excited! More feedings like that and she might be coming home!

They told me that I can now try 2 feedings a day from breast and see how she tolerates it.

They also did an Echo on her heart this morning, and we are hoping to know the results by tomorrow morning.

Her billys were back up to 11, but because of her size, Dr. Miranda told us that she won't go back under the lights unless it goes up some more.